I WRITE to you concerning my daughter, Emily Charles Zawe, who was born on January 30 2003. Emily has a rare disease called osteogenesis imperfecta, which is characterised by extremely fragile bo
nes that fracture or break easily.
At two weeks old, Emily had fractures on both her legs, one above her knee and close to her hipbone. She also had a broken collarbone. Since then she has fractured her leg eight times.
Upon recent examination, Emily was diagnosed as having coxusvarus or a hole in her bone. As a result her right leg is shorter than the left.
On June 22, a specialist doctor advised that a rod should be put in Emily’s legs as they are too weak. Unfortunately, this procedure cannot be done here as the rod and appropriate facilities are not available.
Therefore, Emily’s condition has to be dealt with by an expert in South Africa who is practising at St Augustine’s Hospital in Durban.
A trust fund has been opened with the company I work for, Wintertons Legal Practitioners, through Beverely Building Society. The account name is T Charles and the account number 4370156R. The trust fund will be administered by Alwyn Pichanick.
We are appealing for any assistance to get my daughter the medical treatment she needs. The cost of the operation is estimated at R60 000 which includes transport, visas and the operation.
Emily’s leg is shrinking at an extremely fast rate and the specialist doctor has advised that it should be done before the end of the year.
We would greatly appreciate any assistance you or the people out there can provide. For any further information, please do not hesitate to contact me at (04) 250113-29.
Tamara and Emily